
IrelandFamilies push for access to Skyclarys drug for Friedreich’s Ataxia ahead of HSE decision
Families affected by Friedreich’s Ataxia are making a final push for the HSE to approve access to Skyclarys, a drug believed to slow the progression of the rare neurological condition.
Quorum · collective opinions
Families push for access to Skyclarys drug for Friedreich’s Ataxia ahead of HSE decision
First report 10h agoLast update 10h agoFamilies are urgently advocating for the HSE to approve access to Skyclarys, believing it is crucial for slowing the progression of Friedreich’s Ataxia.
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